Friday, May 29, 2015

An Update. . .

I am almost 5 weeks post-surgery to remove, as my oncologist puts it, the “offending organ.”  It has been quite the ride physically, emotionally, and mentally to be certain.  I have gained some new insights into my body in particular and to the human body in general.  The complexity of the human body and all of its interacting systems amaze me.  If you don't believe me, just try going through having a system get thrown out of whack.

I usually get asked a couple of questions.  The first is what stage is your cancer?  We are all pretty familiar with the stages of cancer, typically 1-4.  Testicular cancer (TC) is a bit different.  This particular variety of cancer is staged by not only by if it has spread, but by pathology.  TC is staged with a number and a letter.  I was staged at 1B.  I was staged as a “1” because the cancer had not spread; and “B” because my tumor was mixed between the nonseminoma and seminoma types of TC.  Remember in my previous post, I mentioned that TC comes in four varieties.  These four are classified into two groups—seminoma and nonseminoma.  Because of the non-seminoma portion of my tumor which is the more aggressive type of TC, my treatment will be just as aggressive.
    
Another question that I am asked a lot is how did I get TC?  Many times, this question comes along with an answer.  I’ve heard that it is because of the Sweet & Low I use in my coffee.  Hmmm.  That’s a thought, but according to the American Cancer Society there is no direct correlation between saccharin and cancer.  I’ve been told that it must be all the running I’ve done in the last several years—you know, all that bouncing and jarring and stuff.  Nope.  There’s no direct line between exercise and TC either (there goes that excuse).   

So what caused my TC?  The truth of the matter is, I may never know.  My doctor said that most scientist agree that for some types of cancer, no one knows what causes it to start, and TC is one of those.   I do know that there are some ideas—perhaps it’s hard coded in my genetic material.  We just don't know.  And I have decided that I'm not going to waste time and energy trying to figure out the answer to a question that at this point doesn't really matter to me anyway, I'll leave that to the scientists.    

Physically, I’m almost completely recovered from the surgery.  My strength is returning, I’ve been able to walk quite a bit and that has helped.  I've been back in the office for two weeks and that’s been great.  This is the great irony of medical troubles.  My family and I have been given two weeks of relative normalcy before we start the next round of treatment and I start to feel poorly again.
   
Chemotherapy, or more often just Chemo; there’s nothing friendly about that word.  In most of our minds, it is quite ominous.  We hear of someone we know having to have chemo and we immediately get this pensive look on our faces as if we can relate somehow.  Your attitude towards it changes a great deal once you have signed up for chemo. 

I’ve had many people ask me, why chemo?  Why do you want to put yourself through that, didn’t they get all the cancer with the surgery?  My response has generally been this exact phrase:  “Better chemo than cancer.”  No one wants chemo.  No one volunteers willingly to undergo the chemotherapy process, but it is a necessary evil.  I could take my chances—this cancer has a 1 in 3 chance of recurring in the first year without treatment.  Someone mentioned to me that means there is a 2 in 3 chance of it not recurring.  That’s true, but I’m not comfortable playing those odds.  Look at it this way.  I have three sons.  Would I willing to risk one of those boys?  Absolutely not!  As I was having this conversation with my doctor, she told me that with treatment, I would have a 99% chance for total recovery—those numbers I like much better.

What is this chemo treatment going to look like?  There’s a lot I don’t know.  I do know that I will have a PICC line inserted first thing Monday morning, and to be honest with you, that’s kind of freaking me out more than anything else so far.    Many people have told me that it is nothing to worry about, that it’s a standard practice.  I know that.  The idea of carrying a tube around in my body going from my arm to my chest—“somewhere near the heart”—is not comforting.  But hey, that’s just me.  If you’re into that sort of thing, I can recommend some people to hook you up. 

Chemo is the next big hurdle in this adventure I’m on.  I’m not looking forward to it; I’m looking forward to it being over with.  I was talking to my lovely wife and made this statement:  “I’m okay with the next 6 weeks being rough, because I’ve got a good 40 years or more left to live.” I may lose my hair-but that’s been an uphill battle anyway, I may be sick for a while, and I may lose some weight.  But at the end of this treatment, my odds of a full recovery are much better.  When I look at my family and consider the alternative, giving 6 weeks of my life is well worth what I’ll be getting—a lifetime of love, joy, and memories with my family.  

I’ll try my best to keep everyone updated on my progress through the next 6 weeks.  Truly my biggest concern is the burden I will be placing on my family.  Please lift up my wife Laura, my three sons-Ethan, Alex, and Seth, and the rest of my family in your prayers as we go through this together.

As always, if you have any questions about diagnosis or treatment of TC, please let me know. 

Friday, May 1, 2015

Not Just for Women, You Know

April 20th is a day that will stick in my mind forever.   I sat in my family physician’s exam room looking into his eyes as he said these words “Well, it’s not good.”  In my heart of hearts, I was expecting the news that he was about to give me. 

About three months before, I’d noticed something different.  My wife’s dear mother passed away from cancer and since then, I had been harassing her on a monthly basis about self-exams.  At one point, she must have gotten frustrated with my regularly scheduled public service announcements and she turned the tables on me by asking “Have you been doing self-exams?  They’re not just for women, you know.”  I decided she was right.  If it was good for the goose, it was good for the gander.  So I started doing self exams. 

And then came the day I found something different.  A lump, a nodule-however you want to describe it, on my testicle.  So I looked it  up on WebMD or some such site and looked for the next step—keep an eye on it.  So I did. 

I kept up the regular self-exams, you know, keeping an eye on it.  Then the other symptoms started showing up—tenderness, swelling, and pain.  After what I can only describe as pain that was downright scary, I called and schedule an appointment with my family physician.  This all occurred on a Friday morning.  I didn't say anything to Laura because I didn't want her to freak out all weekend. 

That lasted until Sunday afternoon when she asked me what had been bothering me all weekend.  We sat down and I told her that I was seeing the doctor Monday morning because I had found something.  My dear wife thanked me for being responsible for my health. 

Monday morning (April 20th) found me in my morning devotions, looking for something from the Word to help me in my day.  I found some scripture that gave me peace in my heart.  I was feeling better so I thought about cancelling my appointment.  A gentle nudging in my soul told me to keep my appointment.  I left for work with peace in my heart. 

Fast forward to a little bit after 11:00 that morning and the doctor is staring in my eyes saying “I’m sorry, but I’m very sure it’s cancer.”  I found myself comforting the doctor telling him it would be okay.  I had peace.  That afternoon, I went back to his office for an ultrasound.  The ultrasound technician was very professional, but as he did the ultrasound, I got a glimpse of what I have come to call "the look."

I went back to work, picked up my laptop and some stuff that I needed to work on, and told my boss that I wasn't sure what the next few days would bring.  He gave me some sage advice “Take care of you, do what you need to do to get in a good place health wise.” 

After that, I had to go home and tell my wife.  And my kids!  What would we tell them?  My wife became a tower of strength.  She took the news like I was telling her the car was broken down.  If I remember correctly, her statement was “Well, we’ll just have to get it taken care of.”  I cried in her arms for a few minutes.  She has been my rock the last two weeks.    We waited until we saw the urologist again to say anything to the boys, but she handled that like a champ as well.

The next morning, a visit to the urologist, and a bunch of tests confirmed that it was indeed cancer, at least as sure as we could be without pathology.  The doctor was very sure that it was cancer, so we decided together on surgery.  

My doctor, my wife, and I made this decision together after much prayer.  I wasn't forced into a decision; I was given the information and made an informed choice. 

On Friday, April 24th, I had an inguinal orchiectomy.  My right testicle was removed and sent off for pathology.  That day is pretty much a fog, but I do remember specific things.  My pastor praying with me before surgery.  Me telling a good friend to check himself in some colorful language (sorry Daniel), me telling my nephews to check themselves, me telling my anesthetist that she needed to tell her husband to check himself.  

And then I remember waking up in Phase 1 recovery looking at a nurse who was telling me it was okay.  Then my doctor appeared and said the surgery went well.  The next thing I remember is careening through the hospital hallways at a high rate of speed driven by someone trying out for NASCAR as I was taken to Phase 2 recovery.  (I’m sure we weren't going that fast, but it sure seemed like it though.) 

The next two days were spent in bed with gradual improvement.  Today, I’m a week out of surgery.  My recovery is going ok.  I still have pain and periods of weakness.    Thanks to a lot of good friends, my great family, my church and many others, I've had a tremendous support structure to rely on, and that has been wonderful.   

The next steps are somewhat unsure.  I have a follow up appointment on Monday, May 4 with my urologist.  At that time we will get the pathology reports and the next steps of treatment if necessary.   You may not know, but testicular cancer comes in four varieties and each variety has a different course of treatment.  After that, I’ll have to see an endocrinologist and perhaps an oncologist, depending on the type of cancer. 

So, yeah, April 20th will stick in my mind for years to come.  It will be the day that my doctor gave me what could be considered the worst news of my life, but it is also the day that my doctor gave me what could be considered the best news of my life.  Right after he told me it was cancer, the doc said this:  “Your wife probably saved your life.  Go home, give her a hug and tell her that.” 

Self-exams save lives.  Regular monthly exams can alert you to changes that you need to be aware of.  I’ve decided a few things in this fight against cancer.  First, I’m not a cancer victim.  I’m going to own this cancer.  I’m going to win this fight against cancer, and I am not a victim, I’m a victor. 

Second, I'm going to be an advocate for self-exams.  Own your health.  Be responsible.  Don’t let cancer make you a victim; don’t let cancer take your life. 

If you would like more information about testicular cancer please visit one of these websites:


Or


For information on self-exams go here:


If you have any questions, feel free to reach out to me.  If you ready for an honest conversation about testicular cancer, reach out via Facebook, Twitter, or through this blog.  Self-exams, they’re not just for women, you know. 


Let me introduce you to George. . .

 As you may know, several years ago, my family jumped into the world of foster care.  For these last years, it’s been babies, babies, toddle...